Help us raise $1M for research and gene therapy trial to beat batten disease.

Give Aashi and children like her a second chance at life

Aashi's Hope Foundation A Project of Mila's Miracle Foundation to Stop Batten

Aashi was born on June 13th, 2012. Aashi means "smile". And true to her name, she filled our lives with smiles from the day she was born. She was a super energetic kid who met her milestones as a toddler. She was a runner, jumper, climber with tons of energy. Her little jumps on the sofa, her tiny voice full of happiness, her ability to win everyone's heart, defined the true meaning of life for us. She loved going to her swimming class, playing with her friends and family members and going to the park. She was a social butterfly and loved to say hi to everyone. One of her most favorite things to do was roam around in the aisles of Target to see all the toys.

We are proud of many things in our life, but nothing beat being parents of our little angel. We felt blessed having a daughter who gave meaning to our lives and brought us pure joy. Like any parent, we looked forward to Aashi growing into a successful, exuberant adult.

Around age three and a half, Aashi started wiggling a little while walking. This raised our concerns, which lead us to search for answers to the root cause. Within a few months, Aashi started having seizures. Initially, we were advised that Epilepsy was the cause.As time passed, we noticed that her speech and her cognitive levels also declined along with her motor skills. We feared something else more serious might be happening. As it turns out, that was the case.

At age four and a half years, after almost a year of consulting with various doctors and specialist, we received the diagnosis that she had Batten disease. Our heart sank, our life changed. Life and dreams were shattered the very moment we discovered what Batten disease could do to a child.

We pulled ourselves together, however, and decided to do something about this devastating disease. We are committed to doing everything possible to help find a cure to beat Batten!!! Help us make this happen for Aashi and other children around the world.

Please donate now.

- Hemaxi & Rishi, Aashi's parents

For CREDIT CARD donations, please use the Donate box above.

For CHECK donations, please use below instructions. Do send us an email at aashishopefoundation@gmail.com when donating via check so we can issue a receipt.

Aashi's Hope Foundation is fundraising through Mila's Miracle Foundation to Stop Batten. All donations will go through their fiscal sponsor, Creative Visions Foundation, a 501(c)(3) nonprofit organization. All donations are tax–deductible.

Contact Us at: aashishopefoundation@gmail.com

Learn more about Aashi, Batten Disease, Gene therapy trial & more on our website: www.beatbatten.org

Supported by 336 Donations:

  • Silhouette
    Anonymous
    God bless you Aashi
  • Mitesh P.
    I Gave $50
    Get well soon Aashi!!!
  • Sahithi C.
    I Gave $25
  • Silhouette
    Anonymous
  • Kallangi S.
  • P P.
    I Gave $100
    Praying for your recovery, Aashi....
  • Silhouette
    Anonymous
    I Gave $50
    Prayers and best wishes for Aashi's speedy recovery!!
  • Demeata W.
    I Gave $50
    Blessings and beyond!
  • Silhouette
    Anonymous
    I Gave $1,650
    We love you Aashi!
  • Shilpa P.
    I Gave $100
    Our children are our lives! Keeping you and Aashi in our prayers 🙏🏼😘
  • Robert H.
    I Gave $100
  • Silhouette
    Anonymous
    I Gave $900
  • Govind K.
  • Partha C.
    I Gave $100
    Praying to god and wishing a successful gene therapy. Hope Aashi will get well soon. All the best and stay strong. God bless!!
  • Silhouette
    Anonymous
  • Paul S.
    Good luck Aashi and family!
  • John G.
    I Gave $100
    On behalf of Kim Farr's fundraising efforts
  • RAmakrishna  k.
    I Gave $100
    Hope she finds a cure for this..
  • Priyanka P.
    I Gave $50
    God bless you princess Aashi..
  • Ekavali M.
    I Gave $250
  • deepika g.
    Good luck cutest lil girl Aashi, may God bless you & your lovely parents!!
  • Silhouette
    Anonymous
    I Gave $25
    I can't even imagine what Aashi and her family are going through. May God give you all the strength to beat this disease. Sending prayers.
  • Selen U.
    I Gave $100
    I hope that the cure can be found and you are able to reverse the effects of the disease. Prayers and best wishes for your family.
  • Silhouette
    Anonymous
    I Gave $25
    God bless Aashi and you! And, may your efforts of 'paying it forward' succeed with a successful clinical trial and gene therapy.
  • z a.
    I Gave $25
  • Jignesh P.
    I Gave $200
    Let's keep our prayers up and fight the Batten Disease together. Hope for the best.
  • Silhouette
    Anonymous
  • Pravin S.
    I Gave $25
    We wish Aashi and other patients like her the best for early cure. Pravin & Bharati Shah Pineville, NC
  • Nimish  P.
    I Gave $100
  • Pradeep A.
    I Gave $20